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P.A.N.D.O.R.A.'s 2010 Awareness Events

Click here - May 12, 2010 Awareness Day Poster on PDF FILE

 

OUR SPONSORED MAY AWARENESS EVENTS

May 8, 2010 - Dr. Nancy Klimas - Chronic Fatigue Syndrome &
Gulf War Illness Presentation at the University of Miami, Miami, Florida. Click here for the PDF flyer information.

 

MAY 11, 2010 - BROWARD CENTER FOR INDEPENDENT LIVING (CILB)

Come and celebrate PANDORA's Awareness Month. This group meets every 2nd Tuesday of the month. May 11 is the regular meeting but on that day they will be celebrating Awareness Month.

Click here for complete information.

 

MAY 12, 2010 - Fibromyalgia Awareness Day Event, Boca Raton

Click here for the flyer

Where: West Boca Raton Branch Library,

18685 State Rd. 7, Boca Raton, FL.

¼ mile North of Yamato Rd. on West side of Street

By Car: FROM I-95: Take I-95 north or south to the Yamato Road Exit (Exit 48.) Drive west to State Road 7. Turn right onto State Road 7. Library is the first left.
FROM FLORIDA TURNPIKE: Take the Florida Turnpike north or south to the Delray Beach exit (Exit 81). At the end of the exit ramp turn right (westbound). Drive west to State Road 7. Turn left onto State Road 7. Library is approximately 4 miles on the west (right side) between Clint Moore and Yamato Roads.

When:

1:00 - 3:00 pm

Facilitator & Guest Speaker

Karen D. Sacks, M.S., L.C.P.C., L.M.H.C. , is one of our board members and serves in our Public Policy Committee. Karen is a nationally certified, licensed counselor, communications and life coach in practice for over 28 years. Her personal insight comes from the fact that she has fibromyalgia and suffers from migraine headaches. She knows first hand the myriad of feelings and challenges that come with pain, both emotionally and physically.Karen is the creator of the "Tools for Life", a practical approach to take back control of your life.

Penny Reynolds-Fernandez, VP-OnetoOne Physical Therapy & Aquatics

Main Guest Speaker:

Addie Dissick, MD- Arthritis Associates of South Florida

Dr. Dissick was born in California and raised in New York. She graduated Summa Cum Laude from Binghamton University and received her M.D. degree from the State University of New York at Brooklyn. Her internship was at NYU – Lenox Hill, and her internal medicine residency was at U. Miami – Jackson Memorial Hospital, where she received the Resident Teaching Award. Dr. Dissick completed her rheumatology fellowship at Georgetown University in Washington, D.C., where she was trained by experts in scleroderma and vasculitis. In addition, she has received the C. Bertram Hoffberger Research Achievement Award, National Young Rheumatology Investigators Clinical Research Award and the DC Rheumatism Fellow Poster Award for her research in rheumatoid arthritis. She is a member of the American College of Rheumatology, the National Osteoporosis Foundation and the American Medical Association. She is Board Certified in internal medicine and in rheumatology.

 

 

 

"FIBROMYALGIAAWARENESS DAY" - WEDNESDAY, MAY 12TH, 2010

Hosted and Sponsored by the Fibromyalgia Support Group of Boynton Beach

1 - Greenwise Store
Boca Village Square
21230 Saint Andrew Blvd.
Boca Raton, Fl.
Hours from 12:00 to 2:00 p.m. Phone no. 561-637-8346

2 - Whole Foods Market
2635 State Road 7 (441)
Wellington, Fl.
Hours from 10:00 a.m. to 4:00 p.m. Phone no. 561-637-8346

For additional information please contact: Donna Boyer -e-maill :dleeboyer6@yahoo.com
phone: 561-637-8346 or Ellen Kyler at 561-732-6617

Below is the widget for IN THE FACE OF PAIN®. Marly Silverman, the founder of P.A.N.D.O.R.A. is among the special advocates creating awarenes for the difficult pain issues, which millions of Americans are facing every day. Clik on the side bar for the advocates list and scroll to Marly's name to hear what she wrote about her involvement as an advocate under this very effective program. The advocates come from al over the U.S. and they are powerful!

 

 

Click here for our May 12, 2009 - Awareness Day poster.

JOIN US AT OUR WALK IN MY SHOES™

WALKATHON ON MAY 23, 2009

 

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Virtual Lobby Day 2009 Begins: Make a Difference!!

 

 

May 12 is international CFS/CFIDS/ME/FM awareness day. For each of the past 5 years, the CFIDS Association has enlisted help from advocates through its Virtual Lobby Day to contact elected officials, health policy leaders and the media about CFS. Virtual Lobby Day 2009 begins now!

Your local media can help spread the word about the impact, severity and prevalence of CFS. Direct them to information resources and ask them to bring greater understanding to the public. Tell your story as an inspiration to reporters to cover the issue. We've added facts and figures to help affirm the effect of CFS on your community.

 

You can check out all the recent coverage of CFS in the media at http://www.cfids.org/sparkcfs/media-coverage.asp. See how individuals like you, talking about their experiences, help raise awareness and deepen understanding.  

 

Click here and :"Take Action," enter your zip code and say as much or as little as you'd like about how CFS has affected your life.

 

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P.A.N.D.O.R.A.’s list of events, during our 2008 Awareness

Day/Month celebrations:

 

May 5-6, 2008

The Empty Chair© Project display at the CFS Advisory Committee Meeting in Washington DC.

 

May 5, 2008 announcement from P.A.N.D.O.R.A.

Subject: News from P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy AnnouncementPress Release
JUST IN TIME FOR P.A.N.D.O.R.A.'s Awareness Month for Neuroendocrineimmune Disorders  celebrations, Yvette Taylo, a director of  P.A.N.D.O.R.A. is honored by the Sun-Sentinel as one of the Unsung Heroes in the South Florida community. 
Yvette Taylor, Director, P.A.N.D.O.R.A.With May 12th Awareness Day for FM, CFS-ME, GWS/GWI, multiple chemical sensitivities, and chronic Lyme Disease, it is the perfect time for a Sun-Sentinel interview with Yvette Taylor, pictured above, about PANDORA and her work as an Advocate Extraordinaire and Leader Against Pain.    Yvette was highlighted in the Sun-Sentinel column - Unsung Heroes, dated May 4, 2008.   Click here to read the article.    After reading the article forward it to others and send a note to Ms. Tina De LaFe. You will find her  contact information in the bottom of the article.    MAY 12 IS AWARENESS DAY!   Join Marly Silverman and Yvette Taylor and become an agent for change. Click here for an update on Marly Silverman's trip to Capitol Hill on May 5-6, 20098-Read her blog Oneagentforchange  CFSAC Member Rebecca Artman & The Empty Chair Project 2007     Pictured above is Rebecca Artman, the sole patient advocate member of the Chronic Fatigue Syndrome Advisory Committee (CFSAC). The commmittee is meeting May 5 and May 6 at the Dept. of Health & Human Services in Washington DC.    
Quick Links OneAgentforChange Blog- Marly Silverman reporting from the CFSAC Meeting in  Washington DC   P.A.N.D.O.R.A.'s Website  
P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
Marly C. Silverman
Founder   
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P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy | A not for profit 501 (c) (3) charitable organization | Business Office: c/o Vina & Company, 255 Alhambra Circle, Suite 715 | Coral Gables | FL | 33134
 

 

May 6-7, 2008

I Need a Hero Project©- Lobby Day for P.A.N.D.O.R.A. on Capitol Hill.

May 12, 2008


Awareness Day Proclamation letters from the cities of Pembroke Pines, Deerfield Beach, Delray Beach, Lighthouse Point, Boca Raton and Delray Beach, Florida and from Murphy, North Carolina. Click here for the complete list and locations.

 

Proclamation Day Ceremony Pictures

 

 

 

 

    

 

Sheila DeRuzza, P.A.N.D.O.R.A.'s Advocate Extraordinaire

and Vice Mayor Brenda Montague

 

 

 

Boca Raton Mayor Susan Welchel and

P.A.N.D.O.R.A.'s board member Karen Sacks.

 

May 23, 2008

Pandora's First Annual Golf Classic Tournament

May 23, 2008

GOLF FORE A CAUSE!

SWING FORE A CURE!

To be held at the Country Club of Miami, on May 23, 2008

6801 N.W. 186 Street • Miami, Florida • 33015

Phone for directions: 305-829-8456       

 

 







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