Federal Advocacy - Lobby Day

P.A.N.D.O.R.A. is joining the CFIDS Association Lobby Day from May 14-15, 2007.

Kim McCleary and Marly Silverman	Kim McLeary, Linda and Bonnie Thornber

2007 Advocates Extraordinaire Barbara Soliday and Dr. Lina Garcia and Marly Silverman, P.A.N.D.O.R.A. founder  met with distinguished House Representative Ileana Ros-Lehtinen to discuss issues affecting our neuroendocrineimmune disorders community in Florida and beyond.  Rep. Ros-Lehtinen has been since the inception of P.A.N.D.O.R.A. a strong supporter of the CFS issues in congress writing letters to NIH asking them to find ways to increase research funding for CFS and supporting language on the budget for CFS.  She has strongly supported our advocacy efforts with the CFIDS association over the years during Lobby Day efforts.

In 2007, Dr. Lina Garcia and Barbara Soliday will join Marly Silverman, founder of P.A.N.D.O.R.A. at the 2007 CFIDS Lobby Day in Washington DC.

Marly Silverman and Rebecca Artman in front of the Humphrey Building- DHHS where the CFS Advisory Committee meets. Ms.Artman was appointed to this committee in 2006.

NEW MEMBERS HAVE BEEN APPOINTED FOR THE CFS ADVISORY COMMITTEE

We are pleased to hear that out of the five individuals most recently appointed for this distinguished committee P.A.N.D.O.R.A. nominated Dr. Nancy Klimas and Dr. Leonard Jason.  See complete list below for the recent 5 (five) nominees:

    Dr. Ronald Glaser, Ohio State University
    Dr. Arthur Hartz, University of Iowa
    Dr. Leonard Jason, DePaul University
    Dr. Nancy Klimas, University of Miami
    Dr. Christopher Snell, University of Pacific

Overall, we are proud to say that we supported the appointments of the following current committee members: Ms. Rebecca Artman, Mr. Jason Newfield, Dr. Morris Papernick, Dr. Lucinda Bateman, Dr. Lenny Jason and Dr. Nancy Klimas.  We are looking forward to working with them on issues that affect our community.

It is very important that we show them our support for their selfless and dedicated commitment to this important committee. Their overall success relies and needs our consistent and strong support. If you are able to travel and or have a family member that can attend the next CFSAC May 16-17 meeting in Washington DC, I hope your will bring your voice and share with the committee your personal challenges and the lack of quality of life that shadows many of the CFS individuals stricken with this debilitating lifelong illness. 

P.A.N.D.O.R.A. is sending representatives to participate in the CFS Advisory Committee meeting. We hope to see you there too!

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