chronic fatigue syndrome, fibromyalgia, fms, cfs, empowerment groups, cfids

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Newsletter May 12, 2007

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P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
Press Release

P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy Announces
The winners by popular vote of the best chronic fatigue syndrome and  fibromyalgia videos of our international advocacy video contest.  Quiet, Light and Action!

Coral Gables, Florida - May 12, 2007 - To mark this year's Awareness Day for chronic fatigue syndrome, fibromyalgia, Gulf War syndrome and multiple chemical sensitivities we are proud to announce the WINNERS OF THE POPULAR VOTE of our much awaited international advocacy video contest. And the results are truly extraordinaire!
 
LIGHTS, SILENCE AND... ACTION!
Individuals in our national and international communities were asked to cast their vote on their personal choice for the following categories: CFS/ME and fibromyalgia (FM) as it was based on the chosen 6 finalists.  P.A.N.D.O.R.A. is thrilled to report today that all popular votes are in,and finally the contest deadline has been reached. The winners of the popular vote are: 
 

Category: Chronic Fatigue Syndrome
Title: Monkeys with Wings
Director: Rik Carlson
Producer: Michael Thurston

Writer: Rik Carlson
Music: Michael Thurston

The story of a prominent businessman in Vermont, whose successful life was interrupted by chronic fatigue syndrome (CFS). The video highlights the special connection to "monkeys with wings"- (gargoyles) strategically placed at his place of business and how they relate to his life journey.

His supporting web site is:www.monkeyswithwings.com  -

 

Monkeys with Wings has had 1,138 viewers since it entered our contest. Click here to see this fascinating video: Monkeys with Wings - Rik Carlson

 
Category: Fibromyalgia
Title: Living with Fibromyalgia
Producer & Director: Nick Easter

The story of a young girl named Holly Fraser, who has to endure a life with the incurable disease Fibromyalgia. Her mother's concern, love and caring support touches the heart of  every parent who has a child diagnosed with fibromyalgia.  Her supporting web site is
www.diagnosesupport.com. Living with Fibromyalgia has had 3,745 viewers since it entered our contest.
Click here to see this amazing video: Living with Fibromyalgia - Holly Fraser's story

Words of gratitude to our sister organizations, empowerment groups, donors, supporters and benefactors who have supported this endeavor that has generated an incredible level of awareness of the plight of individuals suffering with CFS/ME, FM here in the U.S. and abroad. 
 
The outreach of the contest reached heights that we thought were never possible! Stay tuned now for the announcement of the official judges that are still coming in and are still being tallied.
 
P.A.N.D.O.R.A.'s representatives - Marly C. Silverman, Dr. Lina Garcia and Barbara Soliday, one of our 2007 Advocates Extraordinaire and a member of the Miami CFIDS Group, will be attending Lobby Day on May 15 as well as the meeting of the Chronic Fatigue Syndrome Advisory Committee on May 16 and May 17 at the Department of Health and Human Services in Washington DC.  
 
Julio & Sandy Bermeo - PANDORA 2005 delegation
 
Find out much more about our awareness events, advocacy efforts and fund raisers at www.pandoranet.info.  Pictured on your right is Julio and Sandi Bermeo, with the Capitol Hill Building behind them. They were part of our 2005 Florida Delegation on Lobby Day with the CFIDS Association.  
 
About P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy, 255 Alhambra Circle, Suite 715, Coral Gables, Florida, 33134. Volunteer Help Line: 954-783-6771 - Fax: 954-783-1098 - Business Office: 305-440-1591 - We are a nonprofit 501 c 3 charitable organization, headquartered in Florida. 
 
ONE STRONG VOICE FOR MANY ©!
 
Built on Hope       Strong on Advocacy       Finding a Cure through Research

Visit us on the web at www.pandoranet.info

 
P.A.N.D.O.R.A., Inc- Patient Alliance for Neuroendocrineimmune Disorders Organization for Research & Advocacy
Marly C. Silverman
Founder 
954-783-6771
Media please call: 954-629-0976
 

 

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